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Just diagnosed with pancreatic NET stage 1
Neuroendocrine Tumors (NETs) | Last Active: May 14 8:56pm | Replies (152)Comment receiving replies
I also have pnets on the tail end of my pancreas and liver I'm stage 4,, please message me🥰🤗🌹
Replies to "I also have pnets on the tail end of my pancreas and liver I'm stage 4,,..."
Hi @kattz1, I see that you are reaching out to others here in the support group. Welcome.
By sharing here in the forum, you are connecting with several people where all can benefit from multiple experiences and perspectives.
You may also be interested in the monthly Zoom meetings led by a Mayo Clinic social worker. The next meeting is March 2, 2023. Find out how to sign up here:
- Neuroendocrine Cancer Support Group Meeting https://connect.mayoclinic.org/event/neuroendocrine-cancer-support-group-meeting-fl-1-122/
May I ask what treatments you've had or will be getting?
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My wife @kim1965 was diagnosed with NET on tail of pancreas and numerous tumors on liver in April 2022. She was introduced to the Cancer Care Team at Froedert Hospital in Milwaukee. She immediately was put on monthly Lanreotide shots, and started chemotherapy (pills), and now has completed 9 cycles. The tumors have been greatly reduced to the point that surgery to remove what’s left is possible on March 1st. It should be only a mtn issue after that with only continuing the Lanreotide. It is a long fight but we highly recommend a NET specialist, team based group to figure out the best treatment plan, and you too can kick this issue as our doctors mentioned “decades”. Let us know how we can help?