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DiscussionHigh or Fluctuating Chromogranin A Level: What does it mean?
Neuroendocrine Tumors (NETs) | Last Active: Jun 18 3:39pm | Replies (184)Comment receiving replies
Replies to "Anyone on here with a high Chromogranin A blood results. Finding it difficult to get answers...."
Does he also have raynauds syndrome? Look up cold agglutinin disease and related syndromes.
I believe there is also warm agglutinin disease.
Welcome @ttdonnelly.
I moved your message to this existing discussion:
- High or Fluctuating Chromogranin A Level: What does it mean?: https://connect.mayoclinic.org/discussion/chromogranin-a-level-was-539/
I did this so you can read previous posts and connect easily with members like @queenie2030 @hopeful2 @kaforester3 @tomewilson and others.
Chromogranin A (CgA) is a protein released by neuroendocrine cells. A test for chromogranin A measures the amount of CgA in the blood. The test is most commonly used in the diagnosis or monitoring of neuroendocrine tumors.
May I ask why the Chromogranin A test was ordered for you?
My husband has had high chromagranin A for years. They think from neuroendocrine cancer but have never been able to image any tumors after many many scans. He has symptoms of carcinoid syndrome as well. It is very confusing and not well understood. This is just one possibility.diagnosis came from Mayo Clinic visit.