← Return to Breast cancer spread to liver, skull, spine, ribs, hips etc.

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@leeann66

Hello and welcome to the new people in the group and so nice have some supporters (husbands) joining us! As a reintroduction of myself, I was diagnosed with stage IV breast cancer June 2020 at the age of 54, breast tumour, lymph nodes and Mets to femur, both hips, spine, sternum and one rib. I started on Ribociclib and Anastrozole, with XGeva injections monthly. All worked great 19 months, no evidence of disease but then it came back. Switched to Afinitor and Exemastane, had breathing issues so had to stop that, went to Xeloda, manageable side effects but after 6 months the cancer had progressed. I am now 4 treatments in to a new med not yet on the market (on a clinical Trial) that after two treatments already showed a decrease in the cancer!!! Dato-Dxd for short, but doctors ave very optimistic about this treatment for patients like us who have already tried a few other options. Side effects with any drug can be challenging, including this one I am on, I encourage all of you to take the meds they provide for relief regularly to help. The mental aspect we are all facing, there is no pill for that and I also find it hard to stay positive for family and friends etc. But - new medications are coming out regularly and each one getting better!!! Keep hope for that and do your best to live your best life every day you can!!! You are all so brave - the husbands also- to go through this journey and be strong enough to reach out to chats like this to openly share your thoughts!!! Hang in there fellow warriors!!! 😘

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Replies to "Hello and welcome to the new people in the group and so nice have some supporters..."

What a wonderful message! Thank you. And what I always say is, every day we're alive gives researchers another day to find things to help.