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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 3 hours ago | Replies (6011)

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@mmksf

Hi Everyone,
so glad to find a place to learn about this awful condition.
Elder gal just wondering how I'm going live with this.
Look forward to meeting you.
Recently diagnosed with P
Neuropathy.
MMK

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Replies to "Hi Everyone, so glad to find a place to learn about this awful condition. Elder gal..."

Hi MMK @mmksf, Welcome to Connect. I'm sure you have a lot of questions and you've found a nice safe place to meet others that share your symptoms and concerns. You are definitely not alone. There is another discussion that you might want to read through where members have shared their neuropathy journey.

-- Member Neuropathy Journey Stories: What's Yours?
https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

There are also some good sites to learn more about neuropathy that you might want to get familiar with:
-- Foundation for Peripheral Neuropathy - https://www.foundationforpn.org/living-well/
-- Neuropathy Commons: https://neuropathycommons.org/neuropathy/neuropathy-overview

What is your most difficult neuropathy symptom to manage?

My name is Gary and I am 77 years old. I was diagnosed with idiopathic peripheral neuropathy 12 years ago and was told if it begins in a mild form it generally stays that way. Conversely if it begins aggressively it gets progressively worse. Is this true. My tingling and burning in the toes has progressed to mild electric shocks in the lower legs with stiffness and mild weakness in the quads. I have been taking Metanx for the entire time. Embarrassed to say I am not sure it works. A herniated lumbar disc with stenosis and radiation down the leg has come and gone a few times. Walking a few miles everyday no matter what has made the difference. Not sure what future holds