I wish I had known about the thinning & bruising earlier. Now I try to use just OTC CETAFIL or CeraVu instead unless itching gets bad.

It varies. What I originally failed to understand about LS is that the Clobetasol does control flare ups and I have occasionally used it more frequently than prescribed because I was suffering pain like burning, itching and swelling. What it did not do was to control the pain was coming from damaged nerves due to the long time I had undiagnosed LS. The sad fact is that nerve damage can’t be cured with Clobetasol or other applications. When I realized that, a light bulb went on in my head. I was under the impression that the Clobetasol would stop the pain when in fact it was only designed to control such things, as itching, swelling and burning. I needed medication for nerve pain. I discussed this with my doctor and he tried me on 40 gram of Amitriptyline and the maximum allowable of pregabalin (Lyrica). It really did the trick for me. Now the nerve pain that I felt in the vulva, including the urethra and clitoris has just about disappeared. So I am fortunate to be able to tolerate these drugs and I realize not everyone can, but for those who are able to, like myself, it has been lifesaving.