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@tracykarran

Hello, my diagnosis came right after my second Moderna shot in 2021. Been a long journey since then. Was also diagnosed with giant cell arteritis after biopsy. I am still currently on prednisone but still am experiencing pain every day and looking forward to getting to my doctor to see what the next step could be. Would welcome any comments and sharing. I had never had any pain like this in my life until after the vaccine. I am 67 years old

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Replies to "Hello, my diagnosis came right after my second Moderna shot in 2021. Been a long journey..."

Hi @tracykarran, You might find the following discussions helpful since you mentioned being diagnosed with GCA and you still have pain with your current treatment.

-- GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica):
https://connect.mayoclinic.org/discussion/temporal-arteritis-1/
-- Educational Conferences for PMR/GCA?:
https://connect.mayoclinic.org/discussion/educational-conference/

I'm sixty years old. In addition to PMR I also have Sjögren's. I'm taking 20 mg of prednisone daily for the PMR. After several weeks at full dose, I was instructed to reduce it by 5 mg but I deteriorated drastically within a short period of time. I've resumed taking 20 mg of prednisone daily and I'm on my second week of methotrexate injections (16 mg). I still experience pain and limited movement but I'm looking forward to seeing improvement with the shots. So far, I've had no side effects from them. I was very reluctant to take it but really had no choice if I wanted to function better. It was a good choice for me. Another positive note is that, if the methotrexate shots work well, I'll be able to stop taking the hydroxychloroquine (plaquenil) I take for RA (Rheumatoid Arthritis).