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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: May 17 9:50am | Replies (1507)Comment receiving replies
Hi Marcel,
I was diagnosed at 49 and am 56 now. I did go into remission for two years, but by August 2017, MP reared it's ugly head again and it has been a huge struggle to try to reach remission again. The first outbreak was solved with 3 months of Prednisone (40 mg) and then a taper down for another three months. But the side effects were many for me and I ended up suffering from esophageal spasms (feel like a heart attack), so the doctors took me off. This time around, I have not been so lucky, and like you, am also on Azathioprine (4 pills daily) and Tamoxifen (20 mg.) daily as well. This site has been very helpful for me and it really helps to talk to people that 'get it'. I hope the tamoxifen proves to be successful for you! Also, for me, stress and cold, wet climate (I'm from Canada) play large roles in how I am feeling. I hope this was helpful for you....
Replies to "Hi Marcel, I was diagnosed at 49 and am 56 now. I did go into remission..."
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Hello Kim, Thank you for your reply.
I have had two courses of prednisolon (20mg for two weeks) and that gave a lot of side effects, but it helped to reduce the pain and complaints I had at that time. But the "mass", visible on echo's and CT-scan, were not reduced in any way. And the problems were increasing again very soon afterwards.
I have had the same "heavy" Prednisolon course you had, from September last year, and it did maybe something, but it gave very heavy side effect, so over all it might have done more damage that that it did good.
But I'm using Tamoxifen (10mg, once a day) now for almost three weeks and my complaints are much less now: I have less pain and more energy. But I still have to watch my energy-levels, and stress and other things that take a lot of energy are not doing any good to my situation.