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Pediatric HSP - Newly Diagnosed
Autoimmune Diseases | Last Active: Jan 30, 2023 | Replies (4)Comment receiving replies
@jmmiller28
Welcome to Mayo Clinic Connect!
I understand that your son’s illness is confusing - good and bad days.
Have you talked to your son’s pediatrician after the diagnosis was made? The doctor may want to see him again.
Here is a link to Mayo Clinic’s information on Henoch-Schönlein Purpura:
https://www.mayoclinic.org/diseases-conditions/henoch-schonlein-purpura/symptoms-causes/syc-20354040
As you see, rest is recommended- although it’s hard for an 8 year old boy!
The average duration of symptoms is a month, but it could come and go longer. The more serious symptoms such as abdominal pain and kidney symptoms- blood and protein- usually appear early on.
It’s not an uncommon illness among children even though parents never hear about it.
Just call his doctor to see if he needs to be evaluated again.
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Thank you for the reply, it means a lot to me. Yes, he is under the care of a pediatrician and we speak weekly regarding his urine results and blood pressure. All has been normal thus far. I don’t get the sense that there is urgency by the pediatrician to see him again, and instead just an expectation that this will resolve “at some point.” We were told likely 4 weeks, but we are past that point and he continues to suffer through cycles of rashes, joint and abdominal pain, and fatigue.