← Return to Possible Ehlers-Danlos Syndrome with craniocervical instability

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@brendaohrt

Hi,
Can I ask if possibly you have craniocervical instability due to alar or transverse ligament damage in C1 or C2 causing havoc to the rest of the cervical neck region? Can I also ask where you got your DMX (Digital Motion X-ray)? I too suffered from what I believe is craniocervical instability. Seen with individuals who have hit the back of their heads due to trauma and have either stretched or damage their alar and/or transverse ligaments in C1, C2 area. I exhibit many of the symptoms after a bad whiplash with hitting the back of my head...the brain fog, vertigo, vision change, muscle soreness upper neck and back, dizziness, head tremors, swallowing difficulties, rapid heart beat, fatigue, nausea, sweating, GI disturbance, memory loss, tachycardia. It also can cause issue with the TMJ(temporal mandibular joint) or jaw. I have researched in my area for doctors that special in this and have only come across centenoschultz.com in Colorado and caringmedical.com in Florida. They have a more conservative approach of PRP and bone stem cell injections for treatment in the cervical spine but especially the C1, C2 area. Was hoping to get a confirmed diagnoses with the DMX so I can start to pursue treatment options. I have seen a physical therapist who has me working on my deep flex muscles which has helped, PRP with shock wave treatments the cervical muscles and a chiropractor who helps keep me aligned until I am not. Any information is welcomed.

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Replies to "Hi, Can I ask if possibly you have craniocervical instability due to alar or transverse ligament..."

Sounds like chiari 1 malformation