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Replies to "Hello @spainishlady, It's good to have a rheumatologist that is proactive. You will notice we added..."
Polymyalgia Rheumatica (PMR) | Last Active: Feb 26 8:18am | Replies (10)
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Hello @spainishlady, It's good to have a rheumatologist that is proactive. You will notice we added a little to the title of your discussion to hopefully help members with experience join and share their experience. I was not familiar with the test but did find some information on the test itself.
-- Synacthen Test: https://patient.info/hormones/synacthen-test
Has your rheumatologist shared what other conditions they think you might have besides PMR?
Replies to "Hello @spainishlady, It's good to have a rheumatologist that is proactive. You will notice we added..."
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Hi John , yes he believes many people are given the diagnoses too quickly and in an ideal world we should see a Rheumatologist in the first instant . He hasn’t ruled out PMR but he wants to make sure there is no underlying problem . He feels after 8 months I am now heavily Steroid dependant and wants to make sure my Adrenal glands are not completely destroyed .
If there is no response to the test he will take advice from the Endocrinologist.
I have a 15 year history of vague episodes of fatigue and achey body it’s possible , apparently , my Adrenals have been under par for many years . I am otherwise “very heathy “ all my bloods are within normal range. He has tested for all sorts of autoimmune issues.
Unfortunately this thing is not straight forward as we all know.