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MRI MRCP - Cyst (IPMN) - Newbie

Pancreatic Cancer | Last Active: Mar 20 1:22pm | Replies (92)

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@skiball

Dilated 7mm pancreatic duct was found incidental to a bout of diverticulitis in June of 2022. It had also been seen in 2013 when I had a kidney stone but I was not told about it 9 years ago. MRI/MRCP and EUS/ERCP in August of 2022 was benign. I have gotten 3 opinions, one doctor feels Whipple is inevitable. Another doctor feels it is not necessarily inevitable and a third feels I should have a prophylactic Whipple as I am in good health, no underlying conditions. Never had pancreatitis, no other symptoms. I am 70. Right now I am set up to monitor with an MRI every 6 months. I do have a pancreatic cyst at the head. Is anyone else monitoring these benign cysts and for how long? Thanks!

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Replies to "Dilated 7mm pancreatic duct was found incidental to a bout of diverticulitis in June of 2022...."

During what I thought was to be diagnosed as diverticulitis, a 3.9mm Cyst was found on my Pancreas during a CT. This was June ‘22.

Went to Mayo Rochester. Had a subsequent CT in July along with a MRI and EUS . Decided that a EUS biopsy was too risky as it was close to veins - but it did not have characteristics of cancer. CA-19 was ‘16’.

I had a video visit with a Mayo surgeon (Dr. Smoot) who said that my particular lesion was 85/15 chance of being benign. The risk is high as the cyst is located in the back and in the head of the pancreas. Noted that since I am a bit overweight I am in the class of 50% for complications - and even @ Mayo the mortality rate is 1-2%. Therefore monitoring was recommended.

Mayo decided that a followup was prudent in October. CA-19 was ‘15’. Contrast MRI was inconclusive.

Mayo recommended followup in January (here in FL) at the Jacksonville Mayo Clinic. Just got the results 2 days ago. It was determined there was no change and the CA-19 was ‘16’,…THANK YOU GOD.

Additional monitoring will be done in 6 months @ Rochester Mayo,…and if no change then every year,…

So Monitoring, although making me anxious is the route they are pursuing. Best of luck and prayers for you.