For me any minor improvement came when I ate smaller amounts more often, most of the foods I was told to avoid are foods that I rarely eat anyway (fried, spicy, acidic, etc). I tend to feel very full much quicker anyway, but because of the bloating I am not losing any weight. My stress is coming from waiting for the next round of appointments since here you have to wait two months just to see the specialist. You would think if you had something as rare as MP they would want to see you quicker!

Hi mitsy2020, I am happy to hear of some improvement for your husband. When this got real bad for me last month my abdomen felt super tight and bloated was and I couldn't catch my breath. I was under an intense deadline at work and putting in 14 hour days. Went to the ER and was diagnosed by CT with no other issues shown other than a very high white blood count. My tests are still underway and my Doctor will not put me on meds until tests are done. I have discovered foods that make it worse. For me, the reaction comes in about 6 hours into the next day. Also, when stressed with unrealistic demands at work my abdomen now immediately becomes painful. I feel a food diary would be a great idea, something I haven't started yet. Foods that seem to cause me issues are red meat, pork products, processed lunch meat, anything fried, anything spicy, and working on backing off the chocolate (I have a major sweet tooth). I have added lots of water, veggies, probiotics, and magnesium oxide which have all seemed to help. This group has been so helpful to not feel so alone and hospitals that can help, planning on visiting John Hopkins or Mayo in the new year. - Jim

Morning Mitsy2020. I have done the elimination diet a number of times. It sure made a difference. I started with boiled white rice and bits of boiled white chicken meat. Adding only one good item at a time for 3 days to see if I am still good. It’s a long process but worth it. I cannot eat any form of onion or corn, tea or mixtures with many ingredients. I can’t do any strong spices, alcohol, mustard, any seafood. I can only manage small meals, I don’t do convenience foods because there too many chemicals that seem to bother me. It becomes a way of life and easier than it seems. I eat old fashioned food. Most important is to eliminate stress. I was a teacher -always the “crazy” kids and adults -prison, reform school, psychiatric hospitals. So yes -stress made a huge difference. State of mind, good active coping skills important. Stay positive. Eliminate as much stress as you can. But getting lots of extra rest essential. Have you husband find a new way to rest, relax and recoup. We all seem to vary with what works except this it seems. Hugs and good luck on your journey!!