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Neuroendocrine Tumors (NETs) | Last Active: Nov 29 1:22pm | Replies (429)
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@taneall

Thank you Teresa for the information on the carcinoid cancer foundation site and the Mayo Clinic Zoom meetings. I’ll definitely check those out.
My husband was not having any symptoms except a hernia he’s had for 10 years became angry. It’s really a blessing the ER surgeon looked at his small intestine and noticed that it didn’t look right. He did a resection on it, took out 3 inches and that’s where the tumor was. After the pathology came back we knew to go looking for metastasis.
I found some helpful podcasts on the NET research Foundation site. Very helpful information.
Thank you again for replying and for your prayers.
How are you doing after 3 surgeries in 13 years?
Terri

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Replies to "Thank you Teresa for the information on the carcinoid cancer foundation site and the Mayo Clinic..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 25, 2023

Hello again @taneall

I'm glad to hear that you are finding lots of information on NETs and that you are doing your due diligence in this area.

It has now been 5 years since my last surgery and I have some residual problems with eating and processing what I eat, I'm adjusting and feeling OK. As my surgeries were of the upper digestive tract, I have some sluggishness in processing food and eat smaller, frequent meals than previously. I tend to watch the quality of the food (low fat, low sugar, etc.) as well as quantity of food. Adjusting to a new normal is an ever-present activity of mine. I have had consultations with registered dietitians for help in developing an eating plan and those meetings have been quite helpful. Here is a link to a blog about the use of a dietician with regard to cancer treatment.
https://cancerblog.mayoclinic.org/2022/06/15/diet-tips-during-cancer-treatment/
Mayo Clinic has a Cancer Education blog, and you might find this helpful. Here is the link,
https://cancerblog.mayoclinic.org/category/cancer-type/neuroendocrine-tumors-cancer-type/
Since your husband's surgery. has he had any problems with eating or losing weight?

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