Hello @markmark007,

When you say that you do understand that these questions are "patient specific" you are correct. I have heard of NETs patients who have had more than one round of PRRT and most likely there are other treatment modalities that I am not aware of. It is important to communicate some of these concerns with your oncologists.

I might also recommend that you connect with Mayo's virtual support group if you have not done so already. This group meets on the first Thursday of every month from 5:30 to 7 p.m. EST, via Zoom. The meeting originates from the Mayo Jacksonville campus and the facilitator of the meeting is a Mayo social worker. There are approximately 25 NETs patients who attend each meeting. While there is often a speaker from Mayo's staff there is usually a minimum of a half hour when the members have an opportunity to share with each other and ask questions.

I realize that I have not answered many of your questions, however, NETs treatment is quite an individual process.

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