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RLS, fasciculations, tremors, small fiber neuropathy
Brain & Nervous System | Last Active: Jan 26, 2023 | Replies (16)Comment receiving replies
They couldn't figure out why I have tremors on one side of my body. So 5 nerologist that I went to said must be anxiety. Gave me klonipin. Then Xanax Ativan. None of which work. Because it's not anxiety. It's a tremor in my leg and arm with swelling. I have been to so many drs. It's got me at my wits end. Only thing ever came out positive was Lyme disease and they gave me antibiotic. And symptoms are still here. I don't know what else to do anymore
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Christine, I just did a search for long-term effects of Lyme disease, and I think that may be your answer.
Johns Hopkins: Study Shows Evidence of Severe and Lingering Symptoms in Some after Treatment for Lyme Disease
https://www.hopkinsmedicine.org/news/newsroom/news-releases/study-shows-evidence-of-severe-and-lingering-symptoms-in-some-after-treatment-for-lyme-disease
Mayo Clinic -- scroll down to get to the section on long term effect
https://www.mayoclinic.org/diseases-conditions/lyme-disease/symptoms-causes/syc-20374651#:~:text=These%20longer%2Dlasting%20symptoms%20may,Constant%20or%20frequent%20tiredness.
CDC: Post-Treatment Lyme Disease Syndrome
https://www.cdc.gov/lyme/postlds/index.html
Rheumatologists are the specialists who treat Lyme Disease. Have you seen one yet? If not, maybe make an appointment and ask for an evaluation.
Something else that comes to mind -- have you ever had COVID? I'm just wondering if even some of your symptoms may be due to Long COVID. If you've never tested positive for COVID, see if you can get one of your doctors to give you orders for the lab test that shows if you've ever had COVID.
Best wishes to you that you find some answers and some relief soon.
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