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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi John,
I'm taking some multi-vitamins, B12, and alpha lipoic acid. The latter seems like it might help a little. I've been taking Gabapentin for a number of years for Restless Leg Syndrome. I could take more of that, but it doesn't seem to have much affect on the pain (which isn't too bad currently; it's the rapidly progressing numbness that I'm concerned with). I also exercise regularly, and put extra rugs around the house to ease the discomfort from walking.
My neurologist said if it looks like an autoimmune issue, he would probably try corticosteroids or IVIg. I don't know of any other treatments that might be helpful given that the cause is unknown. I saw you posted at some point about The Protocol. Is there anything you think I might be missing?
Replies to "Hi John, I'm taking some multi-vitamins, B12, and alpha lipoic acid. The latter seems like it..."
Hi Larry
So sorry to hear you have neuropathy, it is a very difficult disease to deal with. It has been
Also 1 1/2 year that I was diagnosed with chronic inflammatory demylinating polyneuropathy. At first I started taking a low dose of gabapentin and it did nothing for my pain a year later my dose was increased five times the original dose and my pain is now under control. It took a while to get there but it eventually worked.
You mentioned that your neurologist thought it might be inflammatory in origin, I have found that a healthy diet low in sugar and high in protein has helped me and daily exercise decreases my pain and improves strength in my lower extremities. John sent you a few great neuropathy websites and they helped me immensely.
Hope you and your physician find out what is going on and you feel better soon. Stay in touch.
Kim
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Tough question for me to answer since I'm really not a medical professional and am kind of in the same boat. I started taking the protocol since nothing else had worked for me and it does seem to have stopped or slowed down the progression which is what my neurologist told me would eventually happen. I have been working more on my overall health since I've mostly been in the pre-diabetes category for most of my life. The past 2 years I've focused on losing weight and maintaining it which has helped with the A1C number. I started focusing on that after learning about the metabolic syndrome and it's possible connection with neuropathy since I fit into the metabolic syndrome. Something doctors don't really talk about much which seems kind of strange.
If you want to read/learn more about it, here are some good references:
-- Diagnosis and Management of the Metabolic Syndrome
https://www.ahajournals.org/doi/10.1161/circulationaha.105.169404
-- The metabolic syndrome – What is it and how should it be managed?
https://journals.sagepub.com/doi/full/10.1177/2047487319886404
-- A comprehensive definition for metabolic syndrome
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2675814/
-- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
-- Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/