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Confused: Tapering vs cold turkey stopping prednisone
Polymyalgia Rheumatica (PMR) | Last Active: Jan 28, 2023 | Replies (41)Comment receiving replies
This is a horror story which only confirms what I now believe……most doctors and veterinarians don’t have a clue as to what is wrong with you or what to do. It is a crap shoot.some get the rare docs who really care….sone don’t.mi am so glad you finally got help. I am into this only two months. Cannot imagine six months of that kind of pain. The people I have talked to about it seem to think it is a few arthritic aches and pains. I stopped talking to anyone about it. Again so glad you found help.
Replies to "This is a horror story which only confirms what I now believe……most doctors and veterinarians don’t..."
I also have stopped talking about it for the same reasons as you. People respond with things like, "oh I have pain like that, too." No one thinks I have any issues because I look alright. I only talk to my family about PMR and where I am. A good reminder that we never know what another person is going through. Just be kind.
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Sadly, I was with a well thought of rheumatologist for 4 years and PMR was never even mentioned as a possibility. I finally switched docs and the new one took 15 minutes. I have been with him 2 years and he is such a poor comunicator I am going to try another one near by. At least I know what to ask now.