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Anyone using wearable devices to track and manage long Covid?

Post-COVID Recovery & COVID-19 | Last Active: Feb 4, 2023 | Replies (16)
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@kirstenlheld

My husband and I are taking part in the NIH long COVID study, RECOVER. Neither of us has had COVID yet. They did a battery of blood and other tests at the get go and we will be monitored for four years with follow up tests and surveys. For some people in the study, depending on your current status, you receive wearable devices to monitor symptoms. I imagine if/when one or both of us gets COVID, they will be all over us monitoring everything that happens from the point of diagnosis onward. You might want to see if they are still recruiting participants. There are other long COVID studies going on as well through Johns Hopkins and other institutions that may use similar devices.

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Replies to "My husband and I are taking part in the NIH long COVID study, RECOVER. Neither of..."
lbyrd02 | @lbyrd02 | Jan 24, 2023

thanks for the info but I've been rejected by NIH, Johns Hopkins, Yale,
..... Apparently they don't want people who have had and continue to have
long covid. If you are over 6 weeks into long Covid - Tough Luck, If you
don't live in a close proximity - Tough Luck, If you're old, in severe pain
go to the emergency room as your doctor doesn't care.
I worked in DC during the mid 80's about 3 miles from the NIH Headquarters
in Gaithersburg MD so my Go To research entity is the NIH, My right hip was
replaced by a John Hopkins orthopedic in 1986. (Its the one that hurts the
most right now with long Covid) Did major hospital expansion projects for
Yale and UConn and reached out to all for studies, Long Covid Programs and
simple specialist and got nothing but rejections.

I'm assuming you live in the greater DC area and the baseline test you are
getting should have been given to all several years ago when the pandemic
first broke. Now they need to recognize the disease, provide care to
mitigate the symptoms, warn the public on the side affects of the vaccines
and actively treat it (Long Covid). They know what blood test to take,
scans to perform and how to treat it - they might not have the cure but to
ignore so many as they are doing now is unconscionable.

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