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Living with epilepsy - Introduce yourself & meet others
Epilepsy & Seizures | Last Active: Jun 29, 2023 | Replies (462)Comment receiving replies
Ouch! My first two seizures were amnesia type. I lost a lot of memory with the second one. The third seizure was the tonic-clonic type. I was unconscious for over 2 hours. My neurologist didn’t seem too concerned with my chronic headaches. She prescribed keppra for seizures and another drug for the headaches. I can’t remember what it was. But that medicine didn’t work. I am more concerned if they have the correct diagnosis, so I am getting a second opinion. If you find a drug that works for you, please let me know! Good luck and thanks for responding.
Replies to "Ouch! My first two seizures were amnesia type. I lost a lot of memory with the..."
@albendorf
When you lost your memory, did any of it ever return?
You mentioned you were unconscious for two hours, were you in Status Epilepticus and seizing or was most of that time when you were asleep after the seizure ended?
Of all the seizures I had in the last 50+ years I’ve never had a headache as a result from one.
Here is some information from the Epilepsy Foundation regarding headaches
https://www.epilepsy.com/stories/seizures-and-headaches-they-dont-have-go-together
Take care,
Jake
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Hi @albendorf, Good Morning
I have seen second, third, and many other opinions, before finding my doctor and the best treatment for my epilepsy and myself. What I can share with you is that being treated by an epileptologist rather than a neurologist has made a huge difference. My epileptologist is also a very open doctor, treating with medical cannabis, yoga, diets, and other instruments. I am back to life!!! Do not give up on searching for the right doctor for you. Unfortunately, I can not help you with an epileptologist's recommendation in the US, as I do live in South America. But perhaps others in this group can.
All the best to you and take care!
Santosha