← Return to RLS, fasciculations, tremors, small fiber neuropathy

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@patriciajean

Hi, @rwinney, thank you for letting me know about the @, I appreciate the help!

Here are my techniques (after the dopamine agonist, which is #1).

#2-Exercise is absolutely necessary for me. I cycle several days a week, a minimum of an hour indoors or 1.5 hours outdoors and I walk a minimum of 2 miles several times a week. I do interior painting 10-15 hours a week on average. And yoga twice a week, housework, yard work so I try to be active every day. I use a Garmin Vivoactive watch and keep my daily steps above 5,000 every day.

#3- Healthy diet - low-fat, mostly plant-based. I don't drink or smoke.

#4- Mental health - I see a therapist every 2 weeks via Zoom - he's very knowledgeable about the nervous system as well as the endocrine system and how these systems affect our mental state and visa-versa! We so often overlook the importance of taking care of our mental health. We can't control what happens to us but we can control our response to what happens to us. And how we respond directly affects our physical health so I work hard to reprogram my neural pathways to "let it go" whenever things get difficult.

#5 - Sleep. The body/brain rebuild during sleep so I try to maintain good sleep habits. I haven't done a sleep study but will probably do that in the future as my watch indicates I often don't get any deep sleep at all. My husband can feel my fasciculations while I'm sleeping so my nervous system isn't taking much of a break!

#6 - My village - I've built a village of friends who (in addition to my wonderful spouse and my family) give me a lot of support. They know my struggle so I can reach out to any of them whenever I feel the need. A support group is REALLY important in life in general and crucial during a health crisis.

Besides tremors, fasciculations, SFN and RLS, I have bladder urgency and retention, occasional orthostatic hypotension, reactive hypoglycemia, palpitations, ataxia, difficulty finding words, counting money, being lost in familiar places, tripping, weakness. I drop things and I've lost some confidence with new people because of my difficulties. But I keep a sense of humor which is probably up there between #1 and #2!!

My apologies if this was too much information! Take care and have a great week!!

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