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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)

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@ghennel

My daughter has had similar GI problems for years. She is still undiagnosed. I started going on these groups to do research and get info. When she was a teen she had lymphatic malformations which they surgically removed. There was inflammation in mesentery at the time. So they found it, but they did not diagnose her properly and had no idea what the real problem was. They thought the surgery would cure her and 10 years later she still has pain and horrible GI problems. We are at a loss just finding a doctor to diagnose her properly. I am pretty sure she has mesenteric panniculitis since what she had in her teen years is tied in with this type of disorder. Now to hear that even if we can get her diagnosed there really isn't treatment is very frustrating. The healthcare plan she has limits her ability to find a quality doctor who could diagnose her, much less treat her. They too told her to go to a psychiatrist and wanted to put her on an antidepressant. I feel for you and I hope you are able to find help.

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Replies to "My daughter has had similar GI problems for years. She is still undiagnosed. I started going..."

Welcome @ghennel, many of us have had similar experiences. But we -together-have been able to aid each other with important foods/diets to try and medicines that help. Mayo clinic has been a great help to others who have been able to take advantage of it. Ask lots of questions on the site, share your experiences and those of your daughter. Many choices help, cut back on all the stress you can, change your life to get more rest -as much as you can - and try some other suggestions on diet and medications. Best of luck -stick with us!❤️