← Return to Anyone have radiation enteritis, inflammation of your small intestine?

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@shortylori83

Yes! @dor64, it is extremely painful! I am so sorry you're going through this as well, but the relief must be heaven!
My pain (usually up all night with nausea and vomiting) will last until I go to the ER and get nausea and pain meds.
I have attempted many times to do an NG Tube, but to no avail as my nostrils are too tiny.
Monitored rest and IV fluids are literally my only option.
Surgery is an absolute NO GO because I've had too many abdominal surgeries and my team at UCSF are completely against opening me up again (even laparoscopically).
A friend of mine (this weekend actually) told me her son has the same issues (Radiation Enteritis) and told me to see the Digestive Disease Center. The Specialists there have a better scope for what is happening and can identify other issues surrounding Radiation Enteritis.
I haven't reached out yet- need a Referral.

Donna- have you tried any of the above suggestions I put in previous post? All have been a big help for me!

Knowing that this blockage doesn't allow other food (or nutrients) to pass, I find myself completely mal-nourished. The supplements, at least, have helped.

Let me know and good luck!
Lori

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Replies to "Yes! @dor64, it is extremely painful! I am so sorry you're going through this as well,..."

Hi thanks for your thoughts. Not sure what will happen once they do arthroscopic exploring as if they can then do an op to remove this part of the bowel, it will make more adhesions. But maybe it will give me a few years of a life? Here's hoping