You have endometriosis cancer

Posted by angg11923 @angg11923, Jan 19, 2023

I went for a ultrasound today and found out I have endometriosis cancer, I continue to run that script through my mind.
I'm somewhat okay, but cannot remove that conversation from my mind. Trying to compose myself but the tears continue..
I will be STRONG and keep my FAITH.
Waiting to hear from the Gyn Oncology.
I know Faith and Fear cannot occupy the same space, so I choose FAITH.

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

annaokie | @annaokie | Jan 22, 2023

In reply to @seekatrina "Hello, what was your stage and grade? Was there any spread to the cervix? Was is..." + (show)

Grade 1, staged 1b. It was my gynecologist who called me with the diagnosis and referred me to the gynecological oncologist. I am one month post surgery, and it's like there was never any cancer.

seekatrina | @seekatrina | Jan 23, 2023

In reply to @johnerogler6dfo6x "Stage4 Has spread to the lungs." + (show)

In your condition are they offering immunotherapy or bio therapy or any other type of complementary treatment?

Colleen Young, Connect Director | @colleenyoung | Jan 23, 2023

In reply to @jessy0628 "I really need a group to discuss things about my case and find this thread. I..." + (show)

Hi @jessy0628, welcome to this online support group where you’ll meet many women going through a similar diagnosis. You may also wish to join the monthly Zoom support group led by a Mayo Clinic social worker. The group meets the 2nd Monday of each Month: 5:30 p.m. – 6:30 p.m. EST and the next meeting is Feb 13. Read more details here:
https://connect.mayoclinic.org/event/gyn-support-group-women-of-s-teal-jax-4/
Jessy, when you be having the MRI and chest x-ray?

Helen, Volunteer Mentor | @naturegirl5 | Jan 23, 2023

In reply to @jessy0628 "Hello i am 46 and the other day i got my result from the biopsy of..." + (show)

@jessy0628 This is such terrible news and doubly so given that you are in the process of divorce. And on your birthday too. Are your emotions all over the place? Mine sure were when I was told the diagnosis. I was so devastated that I got lost on familiar route when coming home from the doctor's office.

I had spotting and later cramps that told me something wasn't right as I was post-menopausal. I do hope that when you have the MRI and chest x-ray that these will show no evidence of disease and you can move forward with treatment. What does your doctor recommend? From many of us who have posted here at Mayo Clinic Connect it seems surgery (radical hysterectomy) is the first step. The tissue that is removed is sent to pathology with a pathologist (also an MD) will examine under the microscope and diagnose the type of cancer and the stage. In my case the type of cancer was what the biopsy showed - endometrioid adenocarcinoma - and the stage was considered Stage 1a as no evidence of cancer was found outside the uterus (none in the cervix, ovaries or fallopian tubes). Like you, I was frightened when I received the initial diagnosis but I did start to feel a little better after meeting with the surgeon (gyn-oncology) who explained the treatment plan. Just knowing that I was going to be treated helped a lot.

When is your next appointment with your doctor? When are you scheduled for the MRI and chest X-ray?

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