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I’m sorry that you’re having to go through all of this & that your procedure was halted. Maybe it truly was a blessing in disguise. I am like you, in that I know this problem has to be dealt with and with the best treatment.
I hope you can get the lesion on your tongue evaluated.
My lip has diffuse areas of sun damage. I was a lifeguard for many years & we have lived in Florida for 31 years. I have fair skin.
My nephew is a plastic surgeon in NC & told me that Actinic Cheilitis, which is Actinic Keratosis on the lip is challenging to treat. They start with a chemotherapeutic (Fluorocil lip balm in my case), then if that doesn’t work, go to other options. Being a surgeon, he said the “complete shave” of the lower lip has high success rates. He also said that the lips respond well & cosmetic results are good.
I know I’m getting ahead, but he said a biopsy is important to know what I’m dealing with. The main area is right in the middle of my lip where it looks like I bit my lip, but some of my other lip is still inflamed after the chemotherapeutic treatment.
The dermatologist told me to go on a trip that I’ve had planned for quite some time, so I’m going to try to enjoy it & worry about the biopsy when I return.
My lower lip feels dry & chapped all the time & I use Aquaphor & Vaseline to soothe.
I think I have 3 of the 6 usual signs/symptoms for lip cancer:
1. A sore that doesn’t heal
2. Pain in the lip
3. Red patches on the lip
I’m glad there is an oral cancer support group. Being around other people who are going through the same thing can be beneficial to our mental, emotional & spiritual health.

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Replies to "I’m sorry that you’re having to go through all of this & that your procedure was..."

Hello Marshaj,
I just came across your post and it sounds so similar to my situation. I was a lifeguard here in Massachusetts for eight summers and I have fair skin. I am now in my early 70’s and have had so many basal cells and squamous cells removed from my body, usually using the MOHS technique. Like you,, I started noticing these patchy scales on my bottom lip about a month ago. (For years, my lips always feel chapped, so I didn’t think much of it.). About three weeks ago, I noticed these two or three lesions on my lip. I couldn’t get my dr so I was seen by an NP. She told me that she thought that they were squamous cells and to come back in a week and she would do a biopsy. In the meantime, I was very fortunate to get an appointment with the dermatology dept at Mass General Hospital for May 1st. My lip is so, so sore……a burning feeling…….and like you, I have been using. Vaseline and Aquaphor just to soothe the soreness. I would rather be seen by a doctor for this case in a Boston Hospital, where they have “seen it all”. I have read about that lower lip removal, followed up with cosmetic surgery, and I can’t even believe that this is happening to me. My biggest fear is that this lip cancer has not spread into any lymph nodes in my neck! Glad that you went on a trip and hoping that by now, things have resolved for you. Your case sounds exactly like mine. I hope that you made out well. MaryAnn in MA