← Return to What topics do you want for the Neuroendocrine Support Group?

Discussion

What topics do you want for the Neuroendocrine Support Group?

Neuroendocrine Tumors (NETs) | Last Active: Feb 8, 2023 | Replies (45)
Comment receiving replies
@sanjaykumar1

My chromogranin A level is continuously rising from 500 after operation to more than 9000 now in 9 months after operation. All others dota petscan ,mri,endoscopy is ok . Does anyone throw light on this .

Jump to this post

Replies to "My chromogranin A level is continuously rising from 500 after operation to more than 9000 now..."
Teresa, Volunteer Mentor | @hopeful33250 | Feb 7, 2023

@sanjaykumar1

I can certainly understand your concern about the significant rise in the CgA levels, especially since your surgery. The significance of the CgA levels is best evaluated in relation to other tests. Here is a link to a website of the Carcinoid Cancer Foundation that explains (to patients) the various tests used as both diagnostic and follow-up regarding NETs,
https://www.carcinoid.org/for-patients/diagnosis/diagnosis-and-follow-up-tests/
On Mayo Connect, we also have a discussion that addresses this test and its implications as well as the concerns that it raises. I would encourage you to read the posts in this discussion. Here is the link: https://connect.mayoclinic.org/discussion/chromogranin-a-level-was-539/

Your oncologist is the best person to contact regarding this significant rise in the CgA levels. Have you talked with your doctor about your concerns?

VIEW AND REPLY