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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)Comment receiving replies
Hello @jarnold246
Congratulations on advocating for yourself and also for getting an appointment at Mayo. You were asking about what to expect during your appointment. I would like to introduce you to some Members of Connect who do visit Mayo for their treatment. Please meet @jenniferhunter, @windwalker and @johnbishop, just to name a few.
Here is a link from Mayo's website with some more information about visiting Mayo Clinic, https://www.mayoclinic.org/patient-visitor-guide
Also, here is a link to a Mayo Connect discussion group where folks who have been to Mayo talk about their experiences, https://connect.mayoclinic.org/discussion/need-patients-experience-with-mayo-clinic-is-it-worth-it/
@jarnold246, will you be traveling a distance to get to your Mayo appointment?
Replies to "Hello @jarnold246 Congratulations on advocating for yourself and also for getting an appointment at Mayo. You..."
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Thank you! I am traveling from St Louis MO. I actually work for a highly ranked academic facility which is why this is so frustrating for me that they can "figure out" what's going on. I was diagnosed with MP last summer via CT but the gi doc I went to said no I dont have the body type for it and looked at the ct and said no he didnt see it. I'm beyond frustrated and really need answers as this is affecting my life. Again thank you and I appreciate any insight!