← Return to Starting Proton Treatments for Prostate Cancer: Any experiences?
DiscussionStarting Proton Treatments for Prostate Cancer: Any experiences?
Prostate Cancer | Last Active: Aug 1 5:01pm | Replies (150)Comment receiving replies
Replies to "Wow, only 5 treatments over 2-weeks? I am looking into Proton as a potential prostate cancer..."
I don't come to the site much, but happened "again" to see your comment about my comment.
The last day of treatment at Loma Linda ten years ago (10 weeks of proton radiation), I attended a very large meeting with perhaps over 150 men who had joined the "brotherhood of the balloon". This referenced the balloon which was insert into the rectum and inflated to position and affirm the exact location of the prostate cancer.
The moderator started out with general comments, then asked the group.."how many had PSA over 100?" Several hands went up. He proceeded to scale down to ask the group PSA numbers in grouping. I recall, the majority had PSA of over 10 but under 20.
When I went in..my PSA was 6.4. I discovered it early.
The finality of the moderator was when he asked how many had PSA under 2.0..and all hands went up. At that moment, I knew the correct decision was made, having made the proton radiation decision absolutely solo. I was just after US Army active duty retirement and was working contract for Dept of Defense in Horn of Africa. I went back to Africa for another tour in horrific security and living conditions..and nothing phased me as a result of proton radiation therapy.
If anyone else reads these comment, I truly recommend one does their due diligence on what treatment is best for them..and validate that decision with multiple recommendations from various sources. Do Not depend on one physician to make this life changing decision.
I had a Gleason score of 4+3 (nor sure of decipher score). PSA 8.3 (on finasteride so probably should have been thought of as 2X8.3) mpMRI showed anterior tumor.
I was approved for 5 treatment sessions of PBT at Mayo Rochester. Not all proton treatment centers have the same tech, so some are using ‘older’ protocol of five treatments per week/five weeks. Early 2020 treatment with 4 months of ADT. My PSA scores are holding at less than .10
Hope that helps