@kimegraves good morning. I am being treated for Lyme disease as I have 2 dogs and guess I got bit again. It was Lyme disease they think which started the neurological decline back in 2000. I was a Park Ranger in college. So lot of misdiagnosed things until he did ,infectious disease in Tampa, a lot of Lyme testing and I had the worst case he'd seen. I went on treatment and got worse. I was paralyzed 3x and had to leave my RN career.
Chronic Lyme and small fiber neuropathy which they say has progressed up legs and arms.
Before I had to move as my Tampa doc ordered IVIG and diagnosed the CIDP. I kept falling no use of my legs. So I don't know but I have been on IVIG in infusion clinic for years then offered subcutaneous ig and it is so convenient. I wish I could go to a research hospital but I live so far and can't drive. Have not the money, my insurance would not pay for Center of Excellence in Richmond.
I was vegan, but started eggs for protein.
Have frequent flares and I exercise by walking dogs, stationary bike and dance.
We had a wonderful FB Support group for CIDP but the leader got too sick.
Again my arms tired, more later .
Trish