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Prednisone and Pain

Polymyalgia Rheumatica (PMR) | Last Active: Feb 1, 2023 | Replies (111)

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@deniseinca

Morning
I have been on prednisone for about 3 years ranging in doses from 15 to 35mg. I have been tapering for the last 18mths off the 35mg i was on that for 6mths so tapering has been challenging but able to do it by using liquid pediatric prednisone in less than mg increments.
My CRP levels are great i am on 2mg daily due to taper again. Although my CRP is great i suffer from hip and shoulder pain, it is evident on waking and when getting up from a sitting position especially after driving i know most of you will agree it is typical PMR pain, problem is why is my CRP normalising, unfortunatly i live in a split level home and my sewing room is in the bottom level i find i need to sew early morning and quit by 2 pm each day as the stairs are my major problem by the end of the day i literally crawl up the stairs as my legs cannot do it unaided. I feel that when i place my foot on the stairs my leg is not going to support me and the hip pain is horrible. I saw my Rhuematologist this week and her respinse was keep tapering and a cortisone shot in one of my hips (worst one) for buritus. Does anyone is experience this level of disability? It is truly affecting my life daily and makes all ADL's difficult if not impossible. Is the stairs problem pain normal with normal CRP?
Just looking for others experiences?

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Replies to "Morning I have been on prednisone for about 3 years ranging in doses from 15 to..."

I have to chime in on this one. My labs have been normal also and my top half (was mostly in my biceps) is normal but my legs are a mess. My thigh muscles hurt under load tremendously and are very stiff. They don't hurt at rest or if they are moving and not weight bearing. I bet dollars to donuts that my rheumy isn't going to buy PMR in only the lower half of my body. And I don't want any more pred anyway. I have glaucoma and my opthomalagist would freak. But what the heck is it? I too have to crawl up the stairs and I come down on my butt. Not too glamerous.