I have advanced metastatic paraganglioma since 2018. In early 2019 was initiated on Sandostatin injection intramuscular every 4 weeks and not long after also Zometa infusion. Now on Exgeva because progression of bone matastasis. My oncologist says good chance this year they will add Temozolimide to my regimen. I heard there's some clinical trials going on where they have added Olaparib with the Temozolimide and are seeing good results so my Oncologist is looking into this. He's also mentioned PRRT but wants to save that in case I start to show rapid progression which right now, thank you Lord, isn't happening. The PRRT he mentioned is called Lutathera which uses Lu 177 Dota tate that is directly absorbed by the cancer cells where the radiation is released. Hopefully many years will pass before they decide I'm ready for PRRT as I have read the treatment is quite toxic and it is a long infusion, your at the hospital most of the day. Good luck to everyone you are all in my prayers