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Pineal Cyst: What symptoms led to your diagnosis?

Brain Tumor | Last Active: Oct 30 3:42pm | Replies (45)

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@saphira

Thanks a lot for the kind and comforting words, @amandajro
At the moment I am trying to ignore the symptoms as much as possible and just enjoy myself. Doesn’t always work but I keep trying 😀 today the symptoms were worse, giving me a heavy head, somewhat like brain fog. Because I didn’t expect that diagnosis when I saw the doctor last, I totally forgot to ask at which urgency the referral to the brain specialist was sent out. If I don’t hear back next week, which I don’t expect I will, I will go back to the doctor next Friday. I think what would be helpful to hear from others are two things: what tests/examinations have you done firstly to explore the cyst more, but secondly to rule out other causes of your symptoms? And the other thing is, do you know whether balance exercises help to deal with vestibular issues? When I had a concussion a number of years ago, I was shown balance exercises to help re-calibrate the brain. I am wondering whether those can be effective at all if the cause of vestibular issues is the cyst. I will for sure make a list of questions to ask the doctor next time I see him, and those questions will also be on there. Thank you, y’all. Hanging in there… 🙂

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Replies to "Thanks a lot for the kind and comforting words, @amandajro At the moment I am trying..."

Good luck with your exams. I’ve never followed the pineal cyst thing since my pcp said they’re meaningless & most people have one & aren’t found until after death. Was hoping it would shine some light on tinnitus but he blew me off about it. If you find out anything Please let me know.
I think you mentioned in another post about your eyes moving all around. I had that too. Before one eye protruded & I was dx with Graves’. 7 yr later I was dx with Menieres to explain attack at 4 a.m. room spinning wildly eyes spinning wildly. Throwing up , diarrhea. Had to call 911. They gave me IV with I think vertigo meds and fluids. It resolved pretty quickly. The attack was preceded by a terrible migraine that morning before & I thought I was having a heart attack. I’m watching salt intake closely & on fluid pill. The tinnitus is inescapable except during sleep. There is no help, cure, meds , nothing. Just have to somehow live with it. I isolate a lot.
Good Luck. Get well!