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Anyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)Comment receiving replies
Thank you, Ed!
I have molded myself to ignore the PN pain, nerve lightning strikes throughout the body especially feet and not to mention, major discomfort with everyday activities. It is so difficult to hold a job and tends to be a constant search and way of life for me. Before I know it, I may wind up in the streets and/or living out of my car because of my medical situations.
Also, I had to invent my own extra feet and shoe paddings and/or wear double cushion socks to ease pain with walking, exercise, etc.. I am 55 and figured with years of all doctors, specialist, emergency rooms, hospitals, clinics, etc.. I also found that there is NO real solution for PN as its been said its related to the diabetes II 'and' to better maintain glucose levels. Sadly, I found that PN will NEVER go away ultimately and prescriptions are only a waste of time and lots of money.
To say the least, doctors, specialist, etc. only prescribe Band-Aids to help with the discomfort of PN. Now, I have outstanding and enormous medical balances ever since but will have them until the day I am buried. AND I feel very sorry for those individuals that do not have medical insurance. You're dead!
I am still insulin dependent to reduce glucose levels to 250-300 as I had reached before into 600s and 700s but again will NEVER be normal and enjoy everyday life.
And finally, only want to educate and encourage people maintain your diabetes with insulin, meds, etc. BEFORE your PN kicks in....You will definitely regret it!!!
Again, thanks for your response.
Michael
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You and @njed have really made me think. I agree if there’s a point that our visits/tests/solutions are exhausted with a Neurologist, and we walk out feeling there was absolutely no value or benefit from our expensive Specialist visit, we should downsize our doctor portfolio and put the prescription writing (for my much needed Gabapentin) on our PCP’s who I assume we all would have. That would free up Neurologists to spend time with those they may be able to help. The dreamer in me hopes that one day they’ll find something promising for relief or cure and want to see me again to see if it would help me. Will they call back old patients and say “Guess what, I think you need to make an appointment with me!!!” I doubt it, pretty sure that would never happen. But with a good forum like this, and trying to keep up with reputable (reported) updates or trials that we want to know more about, we could stay in the loop. I wonder if such a single-source database of “us people” could exist so they can just contact us regularly or have a focused “portal” type thing so we can easily access updates in PN, trials, participants wanted, research results etc. so help minimize all the googling across earth we do, and weed out all the snake oil salesman stuff, meaningless studies, non-reputable sources etc. Then we can make an appointment only if we have discovered something very possible we’ve learned might help us, which might very well be never again, but at least we’d all save time and money.