Thank you so much! This is a beautifully curated discussion group. This was discovered 5 months ago. I did indeed consult with a neuroendocrine specialist (University of NM), and the pathology was also confirmed with Mayo. Every doctor I've consulted has specified: 6 months of chemo, lumpectomy, 30 radiation treatments, and long term aromatase-inhibitor. However, I have kidney disease, a missing lung, and numerous co-morbities. I decided against chemo and targeted therapies, and was told I had 1-2 years to live. So I settled into that, working on quality of life. Now the tumor is responding well to the AI and my surgeon is very optimistic about possible curative rather than palliative effects of forthcoming lumpectomy. Obviously a roller coaster! There is almost no info on survival rates--in the only study anyone could find the participants all died too quickly for any kind of outcome. I'm resigned to not "knowing" and proceeding in an authentic manner, but it has been baffling.

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