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HPV P16 positive cancer

Head & Neck Cancer | Last Active: Mar 26, 2023 | Replies (107)

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@michael3319

Hi, I was diagnosed with HPVp16 on 3 Jan 2017. My team offered the surgery and the 35 treatments of radiation BUT said it was my decision. I chose both and I am still alive today.
I just had my 6 year full checkup and results were excellent. The journey was very bumpy as well as smooth from start to now. I say this with one thought in mind, if I wouldn't have had
the node surgery I would be dead today. My belief was if you don't remove ALL suspicious
cells/nodes/etc., the cells have a chance of returning. I have no indication of any cancer as of today BUT I have never thought I am ever cured it is a day to day process. Removal is your decision as well are the consequences if you don't. I did and with the grace of God I am still alive today. Good Luck on your journey and my God Bless you.

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Replies to "Hi, I was diagnosed with HPVp16 on 3 Jan 2017. My team offered the surgery and..."

It's a crooked road for all of us. I had the neck dissection March 2020 after 35 doses proton radiation and 6 chemos in August 2019. The dissection did not get all the cancer there was a tumor wrapped around my carotid artery. The chance for stroke if removed was very high so it remains. Luckily it has been containedi I was on Keytruda for 12 months (it stopped working) and am now on Opdivo more than a year. My situation is chronic. My quality of life is good so i was glad i did not have the second surgery. All of our journeys are different and each attempt to prolong our lives is not guaranteed. Keep hacking away, know that there always seem to be alternatives and your doctors are doing their best to fight this highly unpredictable diease.