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(MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us
MAC & Bronchiectasis | Last Active: Apr 14 3:02pm | Replies (9325)Comment receiving replies
That is so great that you are MAC free after 14 months! I have been on the Big 3 for 1 month and tolerating it well (I know it is still early) but did you experience any negative effects? Also, do you have any tips for minimizing my exposure to NTM? I of course am doing all the usual precautions and I just sent in a sample to test my tap water. It is hard to find something to drink when I go to a restaurant because I can't drink their water or have their ice cubes. Any suggestions since you are so far ahead of me in this fight.
Replies to "That is so great that you are MAC free after 14 months! I have been on..."
I always take a Smart water with me.
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I take my water bottle in and ask the wait staff if I can just drink my water. Only one restaurant has said no. They will bring me an unopened bottle of water for $1.00. That works for me.