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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@kimh

Hello @jacques101, You are not alone, even in Canada. I'm from Ontario and have been suffering from this disease since March 2014. I was diagnosed through CT as well as surgical biopsy. Thankfully, there was no underlying condition. This is a result of a severe fall on black ice. I was in remission for about two years (almost forgot that I had the disease!) due to steroid therapy and eliminating stress (I took a year off). After returning back to work for a year, I fell out of remission, so I have learned that stress is a major factor for me. Also, weather systems affect my pain level as well. I have been battling to return back to my old life (probably not a realistic goal!) and I can share with you some of the meds that I am currently on. I'm taking 200 mg. of azathioprine, 20 mg. tamoxifen and am currently weaning down on Prednisone (I have been on since August 2017!) and am on 4 mg. daily. Also (lucky to be in Canada...), I am also on CBD oil to try to help with inflammation. Also, I have found taking daily saunas (is this in my mind???) to be helpful. I haven't experienced 'heartbeats' in my stomach, but my pain seems to be on my right side of my abdomen and feels kind of like someone sticking their hand and twisting my guts! If you are experiencing nausea, perhaps your doctor might consider Ondansetron. It has been helpful for me. So, as you can see, we are still active on this site lol! I hope this post is helpful!

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Replies to "Hello @jacques101, You are not alone, even in Canada. I'm from Ontario and have been suffering..."

Hi does anyone know a good Dr.In New york for this disease..Im in so much pain..Feels like someone is straggling my mid section and using a blow torch at the same time...