Welcome Jacques101. I’m in Alberta, diagnosed 9 years ago at university hospital in Edmonton. I’m not sure about your “heartbeats”. My symptoms when enraged are extreme pain usually in my left or right sides. I get wild projectile vomiting and quickly become dehydrated and all that comes with that next. I have had this for many years-from a young person they suggested. I have with elimination diets figured out what foods are triggers, figured out I must more then the usual amount of rest and eliminate as much stress from my life as possible. A positive approach is essential. It takes time to figure out what works for everyone manages differently. I never go far without my gravol! This is a positive group-it’s good to know you are not alone. There’s a Facebook group as well. They have made a huge difference with suggestions and support! Be well❤️

Hello @jacques101, You are not alone, even in Canada. I'm from Ontario and have been suffering from this disease since March 2014. I was diagnosed through CT as well as surgical biopsy. Thankfully, there was no underlying condition. This is a result of a severe fall on black ice. I was in remission for about two years (almost forgot that I had the disease!) due to steroid therapy and eliminating stress (I took a year off). After returning back to work for a year, I fell out of remission, so I have learned that stress is a major factor for me. Also, weather systems affect my pain level as well. I have been battling to return back to my old life (probably not a realistic goal!) and I can share with you some of the meds that I am currently on. I'm taking 200 mg. of azathioprine, 20 mg. tamoxifen and am currently weaning down on Prednisone (I have been on since August 2017!) and am on 4 mg. daily. Also (lucky to be in Canada...), I am also on CBD oil to try to help with inflammation. Also, I have found taking daily saunas (is this in my mind???) to be helpful. I haven't experienced 'heartbeats' in my stomach, but my pain seems to be on my right side of my abdomen and feels kind of like someone sticking their hand and twisting my guts! If you are experiencing nausea, perhaps your doctor might consider Ondansetron. It has been helpful for me. So, as you can see, we are still active on this site lol! I hope this post is helpful!

I do feel that! I've said it before and people looked at me like I was crazy!