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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: May 26 10:50am | Replies (6004)Comment receiving replies
My name is Tony and I have some kind of full body neuropathy and autonomic neuropathy. I've noticed today's doctors and Scientists are not very knowledgeable about nerve disorders, bummer. I've experienced full body muscle wasting and increased weakness. my heart rate is fast every time I stand so life has become difficult to say the least. I brought it on my abusing alcohol. I'm sober now but dealing with the consequences. It would be nice to find some people that have similar issues I guess and chat and relate. Anyways that's part of my story.
Replies to "My name is Tony and I have some kind of full body neuropathy and autonomic neuropathy...."
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Hi Tony @tony24, Welcome to Connect. You are not alone in the way you feel about today's doctors not being knowledgeable about nerve disorders. Although, I would tend to cut them a break as there seems to be a limitless number of rare nerve related disorders and I'm not sure every doctor can be expected to be an expert on them. It does put the burden on us to be a better advocate for our own health and learn as much as we can about our condition. If you haven't already seen the following sites on neuropathy, you might want to save them for future reference:
-- Neuropathy Commons: https://neuropathycommons.org/.
-- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/.
I'm happy to hear you've taken the first step if you've been diagnosed with alcohol induced neuropathy. You might want to read through the following discussions to learn what others have shared:
-- Alcohol-related Neuropathy: Anyone had good treatment results?:
https://connect.mayoclinic.org/discussion/alcohol-related-neuropathy/.
-- Alcohol Neuropathy???:
https://connect.mayoclinic.org/discussion/alcohol-neuropathy/.
What symptoms cause you the most trouble?