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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)
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@johnbishop

Hi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness, so no medications help with numbness. I shared my story and what has helped me in another discussion here - https://connect.mayoclinic.org/comment/310341/.

I also have accepted a new normal after being diagnosed with neuropathy but I still search and learn as much as I can about neuropathy and available treatments. I thought you might find these sites helpful.

-- The Foundation for Peripheral Neuropathy has a list of treatments that have shown to help some folks with neuropathy: https://www.foundationforpn.org/treatments/.
-- Neuropathy Commons: https://neuropathycommons.org/.

It sounds like you've done some research on different treatments. How long have you been diagnosed with neuropathy?

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Replies to "Hi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness,..."
michhino | @michhino | Jan 19, 2023

I have been diagnosed with diabetes II approximately 5 years ago and then peripheral neuropathy started three years ago. The peripheral neuropathy symptoms begun with the numbness, tingling with the toes then feet as it grew to calves, thighs and hips. As of today, I am unable to feel feet and need to intake sleep pills for help fall asleep with the pain and nerve lightning strikes from feet to hips..

And far as doctors and specialist, I am only told to maintain my diabetes to help relieve the pain which is total misleading and dishonest. After many researched articles, I have found peripheral neuropathy is NOT curable as its nerve damage throughout the body.

I hope this answers your question.

Michael

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