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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Dec 8 11:43am | Replies (3052)
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@michhino

I agree. It is extremely unfortunate that doctors, specialist, etc. are unable to heal peripheral neuropathy. The symptoms of peripheral neuropathy started with dumbness, pain and tingling including hurtful nerve needle strikes in the feet and started upwards to my hips.

I tried medications such as Gabapentin, and Januvia, etc. for years without any reliefs and cures. I have also spent thousands of dollars with the meds including many massagers, etc. with no relief. Now, I tried to convince myself that I will have to deal with the discomfort and pain the rest of my life.

Ultimately, I have accepted to live with the conditions...

Sad to say, peripheral neuropathy conditions is not curable and I will not spend another dollar with doctors, meds, etc.. as it is a waste of money!!!

Michael

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Replies to "I agree. It is extremely unfortunate that doctors, specialist, etc. are unable to heal peripheral neuropathy...."
John, Volunteer Mentor | @johnbishop | Jan 19, 2023

Hi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness, so no medications help with numbness. I shared my story and what has helped me in another discussion here - https://connect.mayoclinic.org/comment/310341/.

I also have accepted a new normal after being diagnosed with neuropathy but I still search and learn as much as I can about neuropathy and available treatments. I thought you might find these sites helpful.

-- The Foundation for Peripheral Neuropathy has a list of treatments that have shown to help some folks with neuropathy: https://www.foundationforpn.org/treatments/.
-- Neuropathy Commons: https://neuropathycommons.org/.

It sounds like you've done some research on different treatments. How long have you been diagnosed with neuropathy?

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NJ Ed | @njed | Jan 20, 2023

Michael - I do agree with your comments and I've been thinking for a few years why hasn't the medical field found out a way to fix this. Not try this medication or that medication. Yes, some help...for a while...and I'm glad that we have those meds but come up with the solution. No easy answer but my belief is that it has to do with money spent on research and priorities. When my neurologist told me that I would die with this but NOT from it, I knew then that PN was not on the front burner for a cure. Like many, I'm idiopathic. So, it looks like it's going to remain a mystery for a while.

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