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DiscussionAnyone here dealing with peripheral neuropathy?
Neuropathy | Last Active: Dec 26, 2024 | Replies (3053)Comment receiving replies
Replies to "I agree. It is extremely unfortunate that doctors, specialist, etc. are unable to heal peripheral neuropathy...."
Michael - I do agree with your comments and I've been thinking for a few years why hasn't the medical field found out a way to fix this. Not try this medication or that medication. Yes, some help...for a while...and I'm glad that we have those meds but come up with the solution. No easy answer but my belief is that it has to do with money spent on research and priorities. When my neurologist told me that I would die with this but NOT from it, I knew then that PN was not on the front burner for a cure. Like many, I'm idiopathic. So, it looks like it's going to remain a mystery for a while.
Hi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness, so no medications help with numbness. I shared my story and what has helped me in another discussion here - https://connect.mayoclinic.org/comment/310341/.
I also have accepted a new normal after being diagnosed with neuropathy but I still search and learn as much as I can about neuropathy and available treatments. I thought you might find these sites helpful.
-- The Foundation for Peripheral Neuropathy has a list of treatments that have shown to help some folks with neuropathy: https://www.foundationforpn.org/treatments/.
-- Neuropathy Commons: https://neuropathycommons.org/.
It sounds like you've done some research on different treatments. How long have you been diagnosed with neuropathy?