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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)
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@dmaquino

Update on visit at The Mayo Clinic in Rochester...,, we are finally home after 2 weeks! That trip was hard on me but so worth it! We have a concrete diagnosis of Sclerosing Mesenteritis..... I had an MRE, liver ultrasound, blood work and yet another colonoscopy. The docs were wonderful and everyone was very knowledgeable. My GI doc was excellent in communicating with me wether on phone, in person or on the portal! I will continue 40mg of Prednisone and 50mg of 6mp and will have blood work to check elevated liver enzymes as my liver is not tolerating it well..... Mayo will be working with my hometown GI as I am her first case to help her learn how to treat me ..... I hope this helps anyone who is thinking of going to Mayo!!!!❤️

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Replies to "Update on visit at The Mayo Clinic in Rochester...,, we are finally home after 2 weeks!..."
kimh | @kimh | Feb 5, 2019

I am glad that you were able to find the help you needed! I am also happy to hear that the Mayo Clinic will be sharing their expertise with your GI. This is very important. I am the only patient with MP for my GI and GP and together, we have been trying to get my body back in remission. I have been able to learn a lot from this forum regarding possible medications. The only one that I don't recognise is 6mp. Is this an immuno suppressant medication?

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