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Yes my tongue mass and larynx tumor are HPV16 positive. I am waiting to find out what my treatment options are. I will refuse surgery almost definitely. I was told that HPV16 positive is a more treatable form of cancer as opposed to HPV. Has anyone been through this type of cancer? What was your outcome?
Replies to "Yes my tongue mass and larynx tumor are HPV16 positive. I am waiting to find out..."
I was diagnosed with HPV16 positive in the base of my tongue and a neck lymph node in February 2022. In my case, chemotherapy and radiation was recommended as my best treatment options. My final outcome was good as my PET scan in December showed no cancer. I won’t lie that the side effects during treatment were rough and I’m still presently dealing with a couple of minor residual effects, but I’m alive. That being said, I would get a few medical opinions for the the best options and predicated outcomes before you rule anything out. I pray that you find the right treatment and eliminate this cancer. God bless!!
Hi, I was diagnosed with HPVp16 on 3 Jan 2017. My team offered the surgery and the 35 treatments of radiation BUT said it was my decision. I chose both and I am still alive today.
I just had my 6 year full checkup and results were excellent. The journey was very bumpy as well as smooth from start to now. I say this with one thought in mind, if I wouldn't have had
the node surgery I would be dead today. My belief was if you don't remove ALL suspicious
cells/nodes/etc., the cells have a chance of returning. I have no indication of any cancer as of today BUT I have never thought I am ever cured it is a day to day process. Removal is your decision as well are the consequences if you don't. I did and with the grace of God I am still alive today. Good Luck on your journey and my God Bless you.
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If the surgery is the primary treatment and you say you "will refuse surgery almost definitely", then how do you expect a good outcome? While the thought of surgery can be rather scary, it may be the best option.
HPV16 caused cancer is easier to eliminate but the notion that it is more "treatable" rather depends on your definition of that word. A successful outcome with five year success rate is vastly better in HPV16 cancer as opposed to standard squamous cell carcinoma but I believe you will find the treatments are much the same.
It will not be an easy road nor will life's plans go on as usual. This is going to take over your life for a bit. Your choice in the matter comes down to live or die. My dear wife who battles the damage of MS every day is fond of saying "Life is what happens when you are making other plans." At this point life has directed you to deal with this issue, regardless of any other plans you may have made. But I think I can speak for most of us who have put this in our past, this will be a battle you can win and a life changing event that can be considered in an odd sort of way, for the better. Good luck.