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Neuroendocrine Tumors (NETs) | Last Active: 2 days ago | Replies (410)
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@mir123

I have a rare neuroedocrine tumor in my breast. It is treated as "ordinary breast cancer" but I am wondering if anyone has another experience?

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Replies to "I have a rare neuroedocrine tumor in my breast. It is treated as "ordinary breast cancer"..."
Teresa, Volunteer Mentor | @hopeful33250 | Jan 19, 2023

Hello @mir123 and welcome to Mayo Connect. You are correct that a NET in the breast is very rare. We do have a Connect member, @trixie1313 , who does have this diagnosis. You can find her discussion about this at
--NET of Breast
https://connect.mayoclinic.org/discussion/ned-of-breast/
As with all rare cancers, it might be wise to seek an opinion from an oncologist who is a NET specialist. Mayo Clinic has NETs specialists at each of their three facilities (Arizona, Minnesota and Florida). Here's the link if interested http://mayocl.in/1mtmR63. You can also find NET specialists at the Carcinoid Cancer Foundation website.

How long ago was this NET discovered? What type of treatments have been suggested?

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