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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)Comment receiving replies
Hello all. I was diagnosed last year with Mesenteric Panniculitis after a doctor decided to do a ct instead of ultrasounding my gallbladder. My Mom found me this page and have been reading on it for a year. I live in Michigan and have state insurance so I was finally able to go to U of M. They did another ct and now he says I don’t have it?!?!?!?!? When I first started reading the posts on here I was relieved because all the symptoms I was having all of you were too , didn’t feel like a freak anymore. I still cannot eat , so far 20lb loss in 4m, constant pain right under where my ribs separate and the awful stomach bloating. I become so weak and tired after a fit. I know I was is a full fledged fit (uncontrolled pain, vomiting and diarrhea) when they ran the ct on me. I was admitted and nurse said I was on a very high dose of morphine and I was still in pain, just manageable. My question is, has anyone else have this diagnosis taken back? And if so what do they say now? I’m left at the same place I was before my diagnosis, all these problems and no name for it
Replies to "Hello all. I was diagnosed last year with Mesenteric Panniculitis after a doctor decided to do..."
I have had more tests done and they are now saying my Celiac Artery is 70% blocked. Having more test tomorrow to confirm
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Hello @tjakgang and welcome to Mayo Connect,
I am sorry to hear of your constant symptoms and that you are now lacking a diagnosis as well. You must feel very frustrated. When you were formerly diagnosed with Mesenteric Panniculitis what type of treatment were you getting? Did it help?
As you read about the experiences of others, many people have not had a correct diagnosis for a long time. Did the doctors at U of M offer any suggestions to treat your symptoms or suggest any diagnosis for these symptoms? Have you had a biopsy or colonoscopy done yet?
These are all questions to think about. At Mayo Connect, we are not usually medical professionals, just patients like yourself, so we cannot offer diagnoses, just share our own experiences and perhaps help you ask the right questions of your medical team.