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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Dec 4 5:59am | Replies (1518)

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@sneezy24

Hi Folks,

Name is Mick, from Reading, UK. 66 years old (almost 67!)
I had a gastroscopy and CT scan before Christmas because of abdominal discomfort/pain. I've had episodic heartburn/reflux for 10+ years, well controlled with Lanzoprazole.
The gastroscopy shows mild gastritis in the pylorus region, and a small hiatus hernia.
I got the CT scan results yesterday (phoned up and the letter had just been written!). I have mesenteric panniculitis!
Seeing my GI consultant on Monday 14th for more details and treatment plan.

Question: No. 1
I am allergic to penicillin, aspirin, food additives based on azo (coal tar) dyes. I am assuming that non-steroidal anti-inflammatory drugs will also affect me?

Question No. 2
I also have normal tension, open angle glaucoma. Steroids can raise the eye pressure (IOP). My left eye has had a trabeculectomy so shouldn't be a problem (the IOP is well down and in control), but my right eye is marginal on IOP even with drops.

Seems from this my treatment options may be somewhat limited.

Fortunately my eye consultant and GI consultant work in the same offices so hopefully they can talk to each other.

Don't let anyone tell you that getting old is great! It isn't!!!

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Replies to "Hi Folks, Name is Mick, from Reading, UK. 66 years old (almost 67!) I had a..."

Morning Mr @sneezy24-thank you for my morning smile. Getting older and these “golden” years-you are most correct-not do easy to juggle! I am 69 and my lifetime motto of keep moving, keep smiling has definitely been challenged. I am in Canada but hope you can find Docs who help. Sounds like the Mayo is the best of the best! This site has proven to help me not feel alone and get suggestions to try. I have -over many years-found a routine of foods and drugs to eliminate, understand the influence of stress and improved my amount of rest substantially to help with this crazy disease. Sending good thoughts your way!

@sneezy24

Hello Mick and welcome to Mayo Connect!

You are right about the aging process, it certainly can be tough, especially when multiple health challenges seem to hit at once. It sounds like you have maintained a good attitude and you are working with your doctors to find relief. Keep that up!

The questions you have asked in your post might best be addressed by your doctors. As you may be aware, here on Connect most of us are not medical professionals, just patients like yourself. So, we cannot answer medical questions but we can offer our own suggestions as fellow patients who travel down the same road. So, as you read the posts in this discussion group you will see some of the things that people have learned about dealing with mesenteric panniculitis. You will read about dietary suggestions as well as meds that have helped others and other lifestyle changes that people have made in order to deal better with this disorder. I would also encourage you to watch the two videos in this discussion that were posted a day or so ago. The first one recounts a patient's own experience.

Given the fact that you also have Glaucoma, I would encourage you to also visit a discussion on Eye Conditions. Here is the link, https://connect.mayoclinic.org/group/eye-conditions/tab/discussions/?pg=4#group-507-activitystream.

I would be interested in an update on what suggestions that doctor has for you about dealing with this new diagnosis. Will you post again after your appointment on the 14th?