← Return to Mass on lung and lymph nodes
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Replies to "I got my diagnosis today. Malignancy in right lower lobe and multiple surrounding lymph nodes. Not..."
So sorry to hear about your diagnosis. Now I’m back to being concerned about my repeat CT scan. I told you my initial CT scans and PET scan showed one size…..then the Mayo Clinic’s CT showed a smaller mass. Oncologist said cancer doesn’t shrink. So led me to believe it was just an infection. But I’m still coughing, clearing my throat constantly and I’ve got discomfort in my rib cage and back when taking a deep breath. Your story and mine are very similar…..except they cancelled my bronchoscopy and biopsy. We shall see on February 20.
I hope you get treatment or surgery that will completely cure you. Good news is it seems to be confined to your right lung. No metastasis. Prayers for you.
Oh yes, it is definitely not fun to get that confirming diagnosis. The only good thing is now you are done with that stage and can start to do something about treating it.
I don't know why there would be such a difference in size but I bet there is some explanation for that. Maybe the physical mass is 7x7 but only 3x3 of that mass is actively high metabolism. Only the high metabolism part will 'light up' on the PET scan. For me the sizes matched which meant the whole mass was active. I am just guessing, your oncologist will have to explain what is really going on. That is good that it has not spread too far. My lung mass was also lower right lobe but the PET scan showed I had a high metabolism mass in my right sinus, of all places. They had to remove that surgically and found it was not cancer, just some high metabolism mass growing there. Good to have it gone anyhow.
If the lymph nodes are all the very nearby Hilar nodes that is a little better but if some are the little further away Mediastinal nodes then that moves up the stage rating like from 2 to 3. Again that will have to come from your oncologist. Mine was stage 3B because I had both lymph node locations.
The sore throat from the biopsy sounds just like my experience, sore for several days but slowly fading away.
I'm very sorry to hear you are having constant pain and I wish your appointment was sooner to address that issue. I didn't have that. Could you see your regular doctor sooner?
So sorry to hear this!, I hate that so many of us have to go through this. There is good news that it hasn’t spread past the lymph nodes. Don’t be afraid to reach out to the team that did the biopsy to see if the pain is expected based on how extensive the biopsy was.
Waiting for oncology is tough, but usually there is a lot happening behind the scenes during that time. They may be running other test on the biopsy samples (additional analysis used to match a treatment to the specific type of cancer cells), they may be consulting with a tumor board (a group of other cancer specialists from oncology, pathology, radiology) to determine the best treatment plan.
Take care, try to do things that have gotten you through tough times in the past, whatever that may be. Lisa