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← Return to Takayasua Vasculitis
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Autoimmune Diseases | Last Active: Feb 16, 2023 | Replies (8)
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@christol
How old was your daughter when you first noticed that something was wrong?
You mentioned that she is in constant pain- how is the pain managed?
It is a very difficult illness- I once helped care for a young girl with Takayasu’s arteritis. She was stable and functioning well on medication with regular monitoring.
Happy to hear that your daughter now has excellent care and hope that one day they will find a perfect medication for her.
Replies to "@christol How old was your daughter when you first noticed that something was wrong? You mentioned..."
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Thank you so much for your response. It was when she was 25 we all new something was wrong and 29 when we revived the diagnosis. High doses of
prednisone and was on a cancer type of IV for several months, discontinued, I don't remember the name she is now on Remicade IV every 3 weeks she takes a variation of 18 meds daily that's the limit DRs will go some days better than others, we take what we can get. Again thank you for responding.