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Mesenteric Panniculitis or Sclerosing Mesenteritis

Digestive Health | Last Active: Nov 6 8:25am | Replies (1517)

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@hopeful33250

Hello @dmaquino

Welcome to Mayo Connect. I'm sure you are relieved to finally have a diagnosis after 9 months of pain. I'm also glad to hear that you will be seeing a doctor at Mayo.

If you are comfortable sharing more how was this diagnosed for you?

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Replies to "Hello @dmaquino Welcome to Mayo Connect. I'm sure you are relieved to finally have a diagnosis..."

In May, I had a 10cm ovarian mass removed.... was cancerous but was contained.... I still had severe belly pain after several weeks..... my biopsies were sent to Harvard and Michigan because they were abnormal! I spent a week in the hospital June, July, and Aug with a second surgery that revealed an abscess on the outside of my colon...... treated w abx but as soon as meds stopped, pain returned.... surgeon started prednisone and referred to Cleveland Clinic for GI. Numerous invasive test all for inside of colon came back normal .... saw 2 more GI docs. No help.... I’ve had 8 ct scans since May .... saw new GI 3 weeks ago and she diagnosed from first biopsy... she said the mass had abnormal mesentery cells in it.... it also showed on all CT’s! No one really knows how to treat this from what I can see... we are being seen at Mayo fir Dr Pardi, who does see and treat this! Looking for relief as the pain is excruciating........