H,i @janty Welcome to the community. I'm Scott and I was my wife's caregiver during her long war with brain cancer as well as a secondary caregiver for my mother-in-law who had dementia.

While I understand that every patient, their health journey, and caregiver are unique, I will offer some of my experiences in the hopes they might be of some small help to you.

In my case we needed additional in-home assistance when I could no longer do it all for my wife. I was able to find someone to come in just a couple hours a week and that really did help. Then when things progressed we opted for home hospice care for my wife.

In between we did find using a hospital bed was an incredible help in getting my wife in and out of bed. We used a Hoyer Lift to help lift her later on as well. We also used adult diapers during the night so she could not have as many nighttime sleep interruptions, along with pads on the bed. None of these were perfect but they did each help at a certain point in time.

My wife's activity level also declined as her body needed more and more of its energy to fight her disease. It was explained to me that the brain tries to focus only on the most critical of needs, so exercise, etc. can decline at times when the disease is increasing.

As far as how does anyone do this, I can only say someone once said to me "Courage does not always roar. Sometimes courage is the quiet voice at the end of the day that can only manage to whisper "I will try again tomorrow."

If I may ask, how long has your husband been diagnosed with his Alzheimers and Parkinsons?

Strength, Courage, & Peace