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Mesenteric Panniculitis or Sclerosing Mesenteritis
Digestive Health | Last Active: Feb 6 6:57am | Replies (1506)Comment receiving replies
Hi @jamokl246 I'm sad to hear about a rush to diagnosis in your case. Have you had a CT done? When I was initially diagnosed in 2014, I had already had 3 CTs in my abdominal area and to rule out anything more ominous (lymphoma, because the inflammations were growing), I had a surgical biopsy which clearly showed MP. Has this option been given to you? Not sure about MP body habits? When I came out of remission in August 2017, one of the 'tell tale' signs was rapid weight loss. Being 'too' thin, actually makes sense because you have no appetite with this disease. There is always the possibility that you may have more than one thing going on as well, so I wouldn't entirely rule out IBS, but I would expect that you should at least have a CT done, just to be a little more confident in your diagnosis. I hope this helps you at your next appointment and good luck. We have all been there with disbelievers lol!
Replies to "Hi @jamokl246 I'm sad to hear about a rush to diagnosis in your case. Have you..."
Hi @kimh. Yes I had a CT done when I was in er. Radiologists diagnosed me with MP. Then a re read the next day never mentioned it. I had a 3rd radiologist look and he said he would not have called the mp out on the report. Frustrating! No there has been no mention of biopsy or anything. Just going with the flow. Meanwhile I have pain all the time. I have had ibs for 20 years. This is not a new thing to me and I know what that feels like. This is entirely different. I started with right upper quadrant pain and I still have that. Now for the last 2 days I have had left lower quadrant pain to the point it woke me up several times last night. I'm just frustrated and at a loss. I appreciate your response. I may send my ct to mayo to see if I really have this or not. Lots of back story here too. I grew up in an area where Monsanto had dumped radioactive waste near a creek where I played as a child. Now there are cluster cancers being discovered. Google cold water creek if interested. It's a bit frightening.
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I almost wish for weight loss with my MP. But I had 2 CT scans, initially looking for kidney stones. First scan was without contrast and the enlarged lymph nodes were clearly visible. Repeated the CT with contrast and the look like Christmas lights. Also a subtle psuedocapsule and increased attenuation at the Mesenteric root. What does all that mean? Little nuclear bombs going off across my lower left abdomen and across my left side into my left middle back. Osteoarthritis showed up nice and clear as well, lower spine, SI joint. Get both of the going and it's a bad day. My primary care is caring but clueless, she put me on a week's dose of Prednisone, I think she googled that in the other room. I had much relief but it wore off after 2 weeks or so. Sent me to GI, had a clean colonoscopy, she said come back in 6 months for another CT, if same or worst she'll do a biopsy. YAY. GI said she doesn't do steroids or painkillers and referred to a pain management clinic, just last week I rounded up all my records for last 2 years, MRI, CTs, x-rays, blood works. Everybody seems clueless or uncaring. I don't think it's diet related, I believe it's more complicated than that into the autoimmune system realm. My neighbor stumped doctors for years with an autoimmune problem, not MP but bizarre pain in neck and arms and inflamed lymph nodes throughout his upper body. Anyway, good luck. God blessed me with a high pain tolerance.